November 2022 • PharmaTimes Magazine • 9
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LEO Pharma, a leader in medical dermatology, today launched ‘AD Days Around the World’, a global disease awareness campaign that highlights the experiences of people living with atopic dermatitis (AD), the most common form of eczema.
AD is a chronic, inflammatory skin disease characterised by intense itch and eczematous lesions. The condition is the result of skin barrier dysfunction and immune dysregulation, leading to chronic inflammation.
In collaboration with patient advocacy organisations in France, Italy, Germany and Spain, the campaign shares real patient stories to educate and inform people living with AD that, regardless of nationality or culture, there is hope, despite common everyday challenges.
The campaign features global patient advocate Ashley Ann Lora, who travels from the US to France, Italy, Germany and Spain to meet with and document the emotionally compelling stories of four women – Marjolaine, Laura, Julia and África – who are living with AD, each at a different stage in their lives.
Through in-depth interviews, the documentary-style videos show audiences what it is like to live with and navigate the challenges associated with AD.
Medical research charity LifeArc and the Medical Research Council (MRC) have launched a toolkit that aims to navigate the complex journey of medicines repurposing.
The toolkit will help researchers and charities to prepare for the key activities, potential challenges and important questions at each development stage on the repurposing journey, with the ultimate ambition of ensuring that patients get access to life-changing treatments faster.
Medicines repurposing offers new avenues for treating a range of common and rare diseases – it can reduce the costs and time frames, and is potentially a source of treatments. This journey of exploring other diseases, however, can be challenging.
Developed in consultation with scientific, industrial and regulatory experts, the toolkit signposts users to a wealth of existing information. It includes advice on the key issues for medicines repurposing at each development stage, such as research steps for demonstrating efficacy, the regulatory environment, patient engagement and accessing medicines.
Professor Patrick Chinnery, MRC’s clinical director, explained: “Having learned the challenges of repurposing first hand, I think this toolkit is enormously practical and valuable. The major opportunities presented by repurposing are speed, so medicines can reach patients faster, and lower costs, which is needed both within the NHS and lower-income countries.”
Growth Platform – Liverpool city region’s growth company – and the Department for International Trade (DIT) have launched a new vaccines discovery, development and manufacturing ‘high potential opportunity’ (HPO) in recognition of the city’s expertise.
The HPO programme aims to help accelerate the growth of business and industry, boost local job creation and prosperity, and strengthen the UK’s sectorial advantage. The region’s vaccines capabilities will also be promoted to targeted DIT teams.
Researchers from the University of Aberdeen have been awarded almost £1m to fund research into how pregnant women can be supported to plan their birth.
The National Institute of Health and Care Research awarded more than £973,000 to the team of scientists, clinicians and members of the public. Over the next two and a half years, the group will develop an aid that can be used to guide discussion between pregnant women and health professionals.
A team from the University of Lincoln and the University of Sheffield identified how oxidative breaks in so-called ‘junk’ DNA are formed and repaired, exploring how the repairing of these breaks could protect us from neurological diseases in the future.
The discovery unlocks the potential for pioneering new research into this ‘junk’ DNA, which makes up 98% of our total cellular DNA.
In a boost to the UK’s life sciences sector, Mission Street and BentallGreenOak will deliver a science and innovation campus in Cambridge, following the acquisition of a 23-acre site on the city’s Coldham’s Lane. It represents the fifth and largest acquisition by the specialist science and innovation development venture since the partnership formed in January 2021. Furthermore, the platform now has a development pipeline of over 1m square foot of lab and office space in UK locations.
For some European myeloma patients, their diagnosis can take over five months, require four medical consultations and involve visits to at least three different medical specialists.
These are the findings of pan-European research conducted by Myeloma Patients Europe with the aim of exploring patient and doctor experiences of myeloma diagnosis. It ran a survey and focus groups in which more than 600 myeloma patients and 80 haematologists across Europe participated.
MEAction UK held a #MillionsMissing demonstration in Parliament Square in October calling for the ‘millions’ missing from myalgic encephalomyelitis (ME) research. Numerous MPs took part, while Lord Bethell and Fleur Anderson MP made speeches. Researchers also discussed their work and the intersection between ME and long COVID. Preliminary studies show that one-third to nearly half of people with long COVID meet the criteria for the complex, chronic disease of ME.